Special Collection from IssueLab

Will you get the care you need when you face a serious illness?

It depends on who you are. Our synthesis of research identifies various groups of affected people, common barriers to care, and recommended solutions for practitioners and funders.

Improving Access to Palliative Care

About the Project

Foundation Center's IssueLab, with support from The Atlantic Philanthropies, has launched a special collection of resources addressing the issue of increasing access to palliative care. In this collection, researchers and practitioners from nonprofits across the world offer valuable information about the obstacles people face in accessing care, as well as promising approaches for addressing these inequities. The goal of this collection is to provide a place where field-based knowledge on this topic can be available for current and future funders and practitioners to use and build upon.

Sampling of publications:

  • Abandoned in Agony: Cancer and the Struggle for Pain Treatment in Senegal, Human Rights Watch – The 85-page report found that 70,000 Senegalese each year need what is known as palliative care to control symptoms related to chronic, life-threatening diseases. Morphine is an essential and inexpensive medication for treatment of severe pain, but Senegal only imports about one kilogram of morphine each year – enough to treat about 200 cancer patients. Human Rights Watch also found that morphine is unavailable outside of Dakar, Senegal's capital. Frequent shortages limit access to the medication in the capital as well.
  • The Route to Success in End-of-Life Care: Achieving Quality for Lesbian, Gay, Bisexual and Transgender People, National End of Life Care Programme – This guide has been developed following consultation with stakeholders at a series of discussion groups held around the country. It offers guidance and advice for those working with lesbian, gay, bisexual and transgender (LGBT) people, and for LGBT people themselves, whether giving or receiving end of life care.
  • Quality of End-of-Life Cancer Care for Medicare Beneficiaries, Dartmouth Institute for Health Policy and Clinical Practice – The report shows that many challenges remain to improving the care of patients with serious, life-limiting illness. For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States.

Support for this project was provided by